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Sept 1 -- Through this Request for Information (RFI), the National Institutes of Health (NIH) invites feedback on a proposed update to the NIH mission statement. As the largest public funder of biomedical and behavioral research in the world, NIH works to turn scientific discoveries into better health for all. This RFI will inform NIH's efforts to update its mission statement to ensure that it reflects the NIH mission as accurately as possible. Comments must be received by 11:59:59 p.m. (ET) on November 24, 2023 to ensure consideration.

NIH is the nation's medical research agency — making important discoveries that improve health and save lives. NIH's current mission statement at https://www.nih.gov/​about-nih/​what-we-do/​mission-goals is “to seek fundamental knowledge about the nature and behavior of living systems and the application of that knowledge to enhance health, lengthen life, and reduce illness and disability.”

In 2021, NIH established the Advisory Committee to the Director (ACD) Working Group on Diversity, Subgroup on Individuals with Disabilities (https://www.acd.od.nih.gov/​working-groups/​disabilitiessubgroup.html) to dedicate time and resources to identify strategies to support individuals with disabilities. The Subgroup issued a report (https://acd.od.nih.gov/​documents/​presentations/​12092022_​WGD_​Disabilities_​Subgroup_​Report.pdf) in December 2022 that contains several recommendations, including updating the NIH mission statement. The ACD adopted the Working Group's recommendations and provided them to the NIH Director. The report stated: “One immediate action for the NIH to support disability inclusion is to remove the language of `reducing disability' from the NIH mission statement. The current mission statement could be interpreted as perpetuating ableist beliefs that disabled people are flawed and need to be `fixed'.”

To address this suggestion, NIH Leadership committed to evaluate the mission statement, particularly reviewing the inclusion of the phrase “reduce [. . .] disability”, and to update it to better reflect the current and future vision for the agency. Following discussions among NIH Leadership and with NIH subject matter experts, a proposed revised mission statement was developed.

This RFI invites input from interest groups throughout the scientific research, advocacy, and clinical practice communities, those employed by NIH or at institutions receiving NIH support, and the public, on a proposed revised mission statement. The bolded language reflects differences between the current and proposed mission statements.

• Current mission statement: “To seek fundamental knowledge about the nature and behavior of living systems and the application of that knowledge to enhance health, lengthen life, and reduce illness and disability.”

• Proposed revised mission statement: “To seek fundamental knowledge about the nature and behavior of living systems and to apply that knowledge to optimize health and prevent or reduce illness for all people.”

Input sought about the proposed revised mission statement includes, but is not limited to, the following:

• Feedback on whether the proposed new mission statement reflects the goals and objectives as outlined in the NIH-Wide Strategic Plan for Fiscal Years 2021–2025 (https://www.nih.gov/​sites/​default/​files/​about-nih/​strategic-plan-fy2021-2025-508.pdf).
• Suggestions for specific language that could be added to the proposed mission statement and why.
• Feedback on any specific language that could be removed from the proposed mission statement and why.

NIH encourages organizations (e.g., patient advocacy groups, professional societies) to submit a single response reflective of the views of the organization or its membership.
 
FRN: https://www.federalregister.gov/d/2023-18989

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